PNH Patient Resources

Paroxysmal nocturnal hemoglobinuria (PNH) is a serious, unpredictable, and life-threatening disease. This powerful tool gives you access to valuable information about living with PNH and connects you with a community of other PNH patients and their families. Whether you or a loved one is affected by PNH, you are not alone. To help provide your healthcare team the full story of your PNH, your lifestyle changes, signs, symptoms, and lab results must be monitored closely and tracked over the course of your disease management. The PNH Patient Resources mobile app can help you record these important data.